Tuesday 13 June 2017

Stages of Acceptance

A good old Yorkshire saying is that; 'If tha wants summat doing, do it thisen'. True it is.
The internet has a plethora of SEN blogs currently..some are angry, some are descriptive, some are advisory. Some of us parents navigating the education system as an advocate for the neuro divergent child have been at it for years and have come out scarred and battle worn but intact. Others are new to it and really believe that their child's needs will be recognised and supported. And some actually ARE supported, usually when a learning difficulty and IQ score of under 72 is present.

And there are also a massive number of families in limbo. They know the law is on their side but actually accessing support is strangely effervescent and never put in place. Many different scenarios. Often with parents accused of some sort of wrongdoing - impacting on an existing problematic lack of support.

Along with this number of families are an alarmingly large, and growing number of children who are not able to access mainstream - or any formal education. Due to austerity, cuts in budget or rather the misuse of public money to criticise families and prevent support being given, these children are being under privileged on a shocking scale. It would appear, time and again that families are forced to their knees without appropriate and legally due support, then children are the recipients of less choices and negative outcomes.

So when one finds oneself in such a situation, what is one to do?
Well chasing the LA is a full time job and has to be done. The astonishing number of psychological strategies used to avoid supporting children would be impressive if it weren't so damaging and depressing.
What about campaigning? - yes, that's an option. Social and educational reform are very much overdue.
Alongside this, the children's needs are still being ignored. One scenario; the child has a breakdown and unable to manage much at all. A year goes by ... then 2 years go by. Childhood is receding and puberty occurs adding another dimension and distraction to fighting for changing needs and the avoidance of support by the authorities.

Meanwhile, despite all this costing a huge amount more in the long run, not just in disintegration of social values, trauma, damage to families incomes and employment opportunities for the neuro divergent young people... there is an insidious message which has been fostered and proliferated within right wing politics ... vulnerable people are BAD, they are EXPENSIVE and a BURDEN on society. Therefore must be ignored and will hopefully go away some time soon.
Thing is, what politics is saying is a load of bollocks. The number of people inhabiting the earth IS rising, along with the old people and the disabled..... Surprise! Under our current government, so has the number don people earning money and paying taxes. Not that difficult to work out. The government reckons there is less unemployment and hence more employment - hooray! Doesn't matter that these figures are based on highly dodgy statistics based on 0 hours contracts, self employment resulting in losses etc etc. The authorities would have us believe that they are massively successful whilst also suffering the hardships of the plague known as the Vulnerable. It doesn't make sense.

So to counteract the myth that vulnerable people are bad for business, I am setting out to raise the money for my child's educational and social support mostly myself, whilst also being the full time Carer and Non Elective educator. Like many more.

Hence the birth of Indigo Child. I don't want to rant on forever, I aim for a positive outcome. and I aim to explode the myth that the vulnerable are a burden on society.
Do you want to know the real truth? The vulnerable are CREATED in part by society.
Have a wonderful evening all.

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